Yukon child fights deadly disease
YUKON Okla., (KOKH) —
A little girl is fighting for her life tonight, but the family wants to say thank you to the Yukon community.
You could say they're picture perfect, bright eyed Ellie and Maryk Loy are identical twins born just three minutes apart.
"They've been inseparable ever since they turned four on January 29th,” the girl’s father Rory Loy said.
But over the last year life for this family has been anything but perfect. Rory says back in June Ellie started having severe head pain and later was walking funny.
"In the back of my mind I felt like something was wrong, but you never want to accept that,” Loy said.
After several doctor visits and misdiagnosed ear infections, they received a text from their ENT that Ellie needed to be rushed to the Children's Hospital at OU Medical Center because there was a large mass around her brain.
"I mean every emotion, every single emotion is like a tidal wave over you. Fear, mainly fear and sadness. She's a baby, there's no way,” Loy said.
Scans showed several more tumors throughout her body caused by an extremely rare form of cancer.
"It was just really strange because she was just like a normal kid, in a good mood, happy, playing around,” Ellie’s uncle Austin Adkins said.
Over the following months the Loys geared up for a battle with aggressive chemo and radiation, but luckily their warrior wasn't alone.
"Just kind of felt inspired to help her, to help the family, to raise money to raise awareness,” Adkins said.
Ellie's uncle Austin Adkins started a Facebook page, a GoFundMe account, held fundraisers and made t-shirts.
"Of course friends and family have helped, but the people at Pie Five and all of Yukon has rallied around, you can just feel the love and support from everybody and it's incredible,” Loy said.
The family says that support kept them going, after learning Ellie's tumors had grown, and she suffered a brain bleed. The family ultimately decided to discontinue treatment.
"We're just trying to make all the time we have with her as quality as possible, and just trying to get as many smiles as possible,” Adkins said.
Those smiles came early and often, just two weeks ago thanks to Make A Wish Oklahoma, Pie Five Pizza in Yukon and many others, the family got to take the trip of a lifetime to Disney World, their twins were together again for what may be one last vacation, a gift they tell us they could never repay.
"It was amazing. I mean it was, I couldn't have asked for a better experience for my girls, the memories, they will last forever,” Loy said.
The family tells us that since we met with them late last week, Ellie has taken a turn for the worse. Ellie's oncology team believes she may have another brain bleed or the shunt is not working, meaning their time with their little girl may be very limited.
Ellie's mom says nothing can prepare a parent for that news. They are now trying to make her as comfortable as possible.
On Wednesday the community will come together at the Louie's Grill & Bar on NW Expressway to show their support for Ellie in her fight. There will be raffles, auctions, and 'I'm with Ellie' apparel for sale, and a portion of the restaurant's proceeds from 10:00 am to 11:00 pm will go towards helping the family. The Loys again want to say thank you to everyone for everything throughout their journey.
To donate to help the family visit the Fight For Ellie GoFundMe page.