Boy with rare genetic disorder pays it forward after Make-A-Wish gift
The Make-A-Wish Foundation has granted the request of a young boy with a rare genetic disorder and now the boy plans to pay it forward to the hospital that helped him. Two things get 8-year-old Los Angeles boy Dylan Prunty going: The doctors at Children's Hospital Los Angeles and Legos.
"It's magical. I never thought that a brick would bring so much happiness to my child," Dylan's mom Kapka Prunty said.
Dylan's lifesavers were combined when Make-A-Wish granted him a wish.Dylan asked the Lego Masters to design a Lego replica of his hospital. The replica is complete with a helicopter pad, cafeteria, gift shop and even an operating room. Dylan then constructed the piece. Dylan suffers from a rare mitochondrial disorder. Mitochondria are responsible for creating 90 percent of energy the body needs to sustain life. Mitochondrial disorder impacts every child with the disorder differently and for Dylan it impacts his immune and digestive systems. Dylan hasn't eaten solid food in over two years and is plagued with constant kidney stones. "Usually it takes three months to a year for someone to develop a kidney stone. Dylan makes them sometimes in minutes, hours, days. He can pass up to a hundred kidney stones a day." Kapka said. That's where the Legos come in. "It distracts the pain, and it's like the best pain medicine," Dylan said. Dylan's Lego-building skills have far surpassed his peers, his work even has his doctors in awe. Amongst the 4,000 Lego pieces Dylan has constructed to build the hospital there are versions of his favorite doctors. The 8-year-old didn't just build the hospital because he likes Legos. "So we could raise money for more research," Dylan said.It's something doctors say mitochondrial disease desperately needs. Dylan's prognosis is unclear. He is the only known child in the world with his type of mitochondrial disorder. His mother says he dreams of having a normal life. "I wish I could take it all away." Kapka said. (Video Source: CNN)